Oral Presentation Asia Pacific Stroke Conference 2024

Co-design of a website to improve self-efficacy after stroke, from conception to completion. An integrated knowledge translation study. (107508)

Adrian O'Malley 1 , Annette McGrath 1 , Saran Chamberlain 1 2 , Katie Nesbitt 2 , Coralie English 3 , Niranjan Bidargaddi 2 , Erin Godecke 4 , Dominique Cadilhac 5 , Karly Zacharia 3 , Richard Cullen 6 , Leonid Churilov 7 , Lisa Murphy 6 , Natasha Lannin 5 , Nadine Andrew 5 , Billie Bonevski 2 , Robyn A Clark 2 , Zoe Adey-Wakeling 8 , Fiona Jones 9 , Gillian Harvey 2 , Elizabeth A Lynch 2
  1. Lived Experience Contributor, Australia
  2. Flinders University, Bedford Park, SA, Australia
  3. University of Newcastle, Newcastle
  4. Edith Cowan University, Perth
  5. Monash University, Melbourne
  6. Stroke Foundation, Melbourne
  7. University of Melbourne, Melbourne
  8. Flinders Medical Centre, Adelaide
  9. St Georges University of London, London

Introduction: Successful long-term management of stroke relies on self-efficacy, yet there are few resources available to build self-efficacy after stroke.

Aim: To co-design a digital intervention to enhance self-efficacy.

Methods: Integrated Knowledge Translation incorporating co-design. Stroke survivors and carers were involved from conception to completion. The project steering group comprised academic researchers, stroke survivors, carers, digital designers, Stroke Foundation team members and clinicians. A lived experience workgroup (14 survivors, 1 carer) guided selection of digital platform, included content and customised features.

Results: Nine rounds of online co-design meetings were held with the lived experience workgroup from August-October 2023. There was unanimous agreement to develop a website, hosting content that could be tailored to the individual survivor’s or carer’s needs. 10 priority content areas to include were identified: defining self-efficacy and its importance; involvement in healthcare decisions; seeking information; self-advocacy; fatigue management; managing emotional changes; managing cognitive changes; managing mobility changes; managing speaking difficulties. Content should be provided in text and via videos of survivors and carers, sharing real-life experiences and messages of hope.

The workgroup reconvened from March-April 2024 to review the website prototype, provide advice on layout, colour, and language. The domain name “EmpowerMe” was selected. Twenty-six stroke survivors and ten carers recorded >100 videos sharing distinct aspects of self-efficacy, which were embedded on the website.

Conclusion: A website has been co-designed with the input of multiple stakeholder groups to enhance self-efficacy after stroke. The website is ready for user testing, and subsequent evaluation in a Phase II trial.