Background/Aims
Stroke is a leading cause of disability worldwide1. Hospital-to-home transition is a challenging period for stroke dyads (people with stroke and caregivers) to take charge of care due to shortened hospital stays and complex care needs2. Despite the evidence of dyadic interdependence in the transition, little research has explored the individual and collective care needs and expectations of stroke dyads.
The aim of this study was to understand the experience, care needs and expectations of stroke dyads during hospital-to-home transition.
Methods
Guided by Gadamer's philosophical hermeneutics3, this study engaged thirty stroke dyads. Data were collected through interviews with stroke dyads before hospital discharge, at 3 and 6 months after discharge.
Results
Stroke dyads' perceived preparedness for discharge was influenced by their psychological status, resilience, and level of engagement in discharge planning. Returning home was seen as a significant milestone in the post-stroke trajectory. However, caregivers expressed uncertainties regarding their role and home care, resulting from inconsistent engagement in discharge planning.
After discharge, stroke dyads experienced setbacks due to physical and psychosocial factors. The perceived dyadic interdependence generated positive impacts on their adaptation to challenging situations. Caregivers provided psychological support for people with stroke, yet their role was not fully recognised, nor supported within the healthcare system. Moreover, stroke dyads expected enhanced communication, greater engagement, and needs-driven tailored care services.
Conclusion
Findings support dyad-centred hospital-to-home transition care, emphasising collaboration, communication, and needs-driven tailored care services.