Background/Aims
Neurological damage (1) and psychosocial changes after stroke can cause relationship problems and declining sexual wellbeing (2,3). Sexual wellbeing is an essential component of mental health, but is not routinely supported (4). Digital technologies can deliver much-needed support, resolve time constraints for professionals, and allow autonomy, privacy, and anonymity for participants. This study assesses the feasibility of a digital self-management programme to support sexual wellbeing: HOPE4ABI (5).
Methods
We aimed to recruit sixty participants with diagnosed or suspected stroke or any other type of brain injury, randomised to the intervention (peer-supported) or control (self-directed) arm. HOPE4ABI is a co-designed 8-week psychological intervention, with new content released weekly. Participants completed surveys at baseline, 8-weeks, and 6-months to measure wellbeing, and post-course interviews to explore acceptability.
Results
The recruitment target was initially exceeded (n=73), but only 53 participants completed baseline and randomisation (intervention n=27; control n=26). Acceptability interviews (n=10) indicate the content and activities were helpful, but participants may need more time to complete modules. Participants reported HOPE4ABI had helped them initiate personal conversations around sexual wellbeing. Response rates at 6-months are promising (~70%, ongoing), and indicate improvements in mean scores of quality of life and sexual wellbeing, across both trial arms.
Conclusion
The feasibility results indicate that a fully powered trial is warranted, and preliminary findings are similar to studies with other clinical groups (9,10). The digital HOPE4ABI programme is potentially a sustainable, cost-effective solution to supporting mental and sexual wellbeing after stroke, brain injury and other limiting long-term conditions.